Rare Disease Report

Yusuf Patel - Portrait of Courage and MMA Patient

MAY 20, 2015


Methyl Melonic Acidemia (MMA) is a rare metabolic condition in which patients cannot properly digest proteins.

Yusuf Patel is a boy with MMA and at this year's NORD Portraits of Courage Gala, he was honored for his courage in raising awareness of this condition as well organ donation.

In this interview, Yusuf's father, Irfan Patel, describes the condition and its management - which in Yusuf's case involved a kidney and liver transplant.

Today, the Patel's are passionate advocates for Organ Donation (http://www.donors1.org/).

Stay informed on the latest rare disease news and developments by signing up for our newsletter.
$related$
Copyright © RareDR 2013-2018 Rare Disease Communications. All Rights Reserved.