Rare Disease Report

The Power of Sports to Raise Awareness of Orphan Diseases - The Progeria Story

DECEMBER 12, 2014


Sporting events are a great way to bring a community together. They are also a great way to raise awareness of orphan diseases to a new audience.

In this interview with Audrey Gordon, president of the Progeria Research Foundation (PRF), Ms Gordon talks about the numerous sports teams and celebrity figures (e.g., New England Patriots, Boston Bruins, Chip Foose, and Erica Enders) she has met and who have helped raise awareness of progeria.
 
For more information about PRF, visit http://progeriaresearch.org/

Stay informed on the latest rare disease news and developments by signing up for our newsletter.
$related$
Copyright © RareDR 2013-2018 Rare Disease Communications. All Rights Reserved.