Rare Disease Report

Pain Management for Epidermolysis Bullosa

AUGUST 04, 2014


Epidermolysis bullosa or 'the worst disease you've never heard of' is a group of rare skin disorders that manifest as blistering or erosion of the skin.

In this exclusive interview with Kenneth Goldschneider, MD, FAAP and director of the Cincinnati Children’s Pain Management Center at the Cincinnati Children’s Hospital Medical Center at the recent Debra Patient Care Conference, he talks about the myriad of painful conditions these children endure and how they are best managed.

For more information about EB, visit www.Debra.org

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