Rare Disease Report

Devin Alvarez (Sprengel's Deformity) - Portrait of Courage

MAY 22, 2015

Sprengel’s Deformity is rare congenital condition that begins with a misplacement of the shoulder but can result in plethora of skeletal and muscular deformities.

For example, Devin Alvarez has had 44 surgeries related to his condition.

The strength and courage it takes to undergo that many surgeries while still attending high school and staying optimistic is why Devin was honored this year at the National Organization of Rare Disorders (NORD) Patients of Courage Gala.

Stay informed on the latest rare disease news and developments by signing up for our newsletter.
Copyright © RareDR 2013-2018 Rare Disease Communications. All Rights Reserved.