Rare Disease Report


Among the recommendations to reduce risk of SIDS are to have the baby sleep in the parents' bedroom and to keep soft objects away from the infant's sleeping area. Breastfeeding is also recommended
While the sickle cell trait is not rare or life-threatening, studies show that participating in physical activities may put someone diagnosed with the trait at higher risk of cardiovascular problems that can be life threatening.
When examining metabolic syndrome, lifestyle modification involving disciplined dietary control and increased physical activity can become more critical than medical therapy.
The triple drug study found increased bone mineral density, but no other improvement. A new study is underway with lonafarnib with everolimus.
The SOLACE organization is a nonprofit group dedicated to increasing shared knowledge about lysosomal acid lipase deficiency (LAL-D).
The mission of Parent Project Muscular Dystrophy (PPMD) is a straightforward one: curing Duchenne muscular dystrophy.
Development of Devices for Rare Diseases Remains Challenging
A photo of 29 year old professional powerlifter David "The Beast" Douglas, and 12 year old Progeria patient, Lindsay Ratcliffe has gone viral.
Although the vast majority of cardiological conditions are fairly common or very common, rare cardiovascular problems continue to strike people around the globe.
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