Huntington's Disease 101: A Conversation With Louise Vetter


Huntington's Disease is an inherited brain disorder that results in the progressive loss of both mental and motor control. Symptoms usually appear between the ages of 30 to 50, and worsen over a 10 to 25 year period until the patient eventually dies.
In this exclusive interview with Rare Disease Report, the Chief Executive Officer of the Huntington Disease Society of America (HDSA), Louise Vetter talks about the condition and why it is often difficult for those at risk for developing Huntington's disease to take the genetic test that will confirm the diagnosis. As Ms Vetter states in the interview, knowing at age 20 that you will eventually develop Huntingto'sn Disease when you are 40 is like knowing you will be hit by a bus tomorrow. Some people simply do not want to know.

For more information about Huntington's disease, HDSA, and their upcoming annual conference, visit

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