Fibromuscular Dysplasia Society of America

James Radke

Fibromuscular Dysplasia (FMD) is a disease in which abnormal cell development occurs in one or more arteries.  Common arteries affected include the renal, carotid, and vertebral articles.  FMD may also develop in arteries in the abdomen or extremeties but that is less common.

Many people with FMD do not have any symptoms or signs on physical examination and are diagnosed by accident during a radiology scan for another problem.

Signs and symptoms will be dependent on the artery involved. For example,

FMD of Renal Artery:                                                             
• High blood pressure                        
• Abnormal kidney function as detected on blood tests
• Flank pain from dissection or infarction of the kidney
• Kidney failure
• Shrinkage of the kidney

FMD of Carotid Artery:                                                                     
• Bruit  heard in neck with stethoscope                            
• Swooshing sound in ear                                                        
• Ringing of the ears
• Vertigo
• Dizziness
• Headache
• Transient ischemic attack
• Stroke
• Neck pain
• Horner's syndrome
• Dissection

In this exclusive interview with Rare Disease Report, Pamela Mace, Executive Director of the Fibromuscular Dysplasia Society of America Inc talks about FMD and some of the work their organization is doing to raise awareness of this silent - but potentially fatal - condition. For more information, visit
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