Rare Disease Day - How Important is it?

Austin Letcher

Austin Letcher of CoRDS (Coordination of Rare Diseases at Sanford) talks about the importance of Rare Disease Day.


Oh, it's huge. I mean for raising awareness, it is so fundamental to creating change and I think that's what all of us are here to do today. We actually just have a couple events at Sanford research in Sioux Falls South Dakota where we were trying to do the same thing – creating awareness, bringing people in to create a sense of community because that sense of isolation is really present for every single rare disease and I think that's something that we need to continue as advocates, patients and leaders – to really spread the word.
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