Rare Disease Report

Worldwide Syringomyelia & Chiari Task Force

NOVEMBER 09, 2016
Beth Nguyen, RN

Beth Nguyen, RN, is a patient with syringomyelia, a rare disease in which cysts form inside the spinal cord leading to a plethora of deliberating symptoms. 
In this interview, Ms Nguyen talks about the advocacy group she co-founded, the Worldwide Syringomyelia & Chiari Task Force and its goals to educate clinicians about this condition and help patients manage their condition (and find a cure).
For more information, visit www.wstfcure.org

Stay informed on the latest rare disease news and developments by signing up for our newsletter.
Copyright © RareDR 2013-2018 Rare Disease Communications. All Rights Reserved.