Rare Disease Report

Two $100,000 Grants Available for Alport Syndrome Research

JANUARY 21, 2017
RDR Staff
The Alport Syndrome Foundation (ASF), the Pedersen Family and the Kidney Foundation of Canada (KFOC) have announced funds are availalbe for researchers hoping to advance our understanding of  Alport syndrome.
The program anticipates awarding two $100,000 research projects.
Applications are due March 20, 2017.
There are no geographical limitations of this funding.

Types of Proposals Sought

Research proposals being sought are those with the potential to accelerate the development of new treatments to prolong kidney function and prevent hearing loss including:
  • Identification and investigation of target pathways in disease progression
  • Drug repurposing of existing approved drugs or other new approaches to improve the current standard of care.
For more information, visit  alportsyndrome.org/research/2017-request-for-proposals/

About the Alport Syndrome Foundation         
ASF is the leading independent nonprofit organization in the United States serving and giving a voice to the Alport Syndrome community. ASF’s mission is to improve the lives of patients through education, empowerment, advocacy and research to realize the vision of conquering Alport Syndrome.
For more information, please visit www.alportsyndrome.org.

About the Pedersen Family
The Pedersen Family from Calgary, Alberta is the largest funder of Alport Syndrome research in Canada. Funding has been directly to researchers and through the KFOC in collaboration with the Alport Syndrome Foundation as well as to the patient registry program (ASTOR). 

About the Kidney Foundation of Canada
Kidney health and improved lives for all people affected by kidney disease - for over 50 years, this vision has guided The Kidney Foundation of Canada to be a collaborative, inventive and focused leader in the development of programs, services, research opportunities and awareness campaigns that have had a positive impact on the millions of Canadians living with, or at risk of developing, kidney disease.
For more information, please visit http://www.kidney.ca/

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