Rare Disease Report

The Patriots Will Win Super Bowl 51 (and Are the Best Team for Rare Diseases)

FEBRUARY 03, 2017
James Radke
As you may recall, 2 weeks ago, my New England Patriots won the AFC Division Title Championship game by beating Andrew’s Pittsburgh Steelers and advanced to Super Bowl 51. The Pats showed they were a better football team, and equally important, that they remain the best team for contributions to rare diseases. Here is a recap on why they are the best:

The Patriots & Progeria

The New England Patriots have worked with Progeria Research Foundation on many occasions. A memorable event was “A Day with Sam” where a Foxborough teen diagnosed with Progeria got to watch a Patriots practice at Gillette Stadium with none other than Robert Kraft, the owner of the team. Sam got to tour the facility, beginning with a stop at Kraft’s trophy room, which prominently displays the Patriots’ 3 (now 4) Super Bowl trophies.
Sam was also elected to be a captain of a Patriots’ game, but unfortunately passed the day before the game.

Tom Brady, A Hero to Many

6-Year-Old Logan Schoenhardt has been battling cancer for the past 6 years. Recently, Logan learned that his cancer is progressing and that his time left has been severely shortened.
With his condition, Logan could never play football himself. But that didn’t stop him from idolizing his favorite team the New England Patriots, and his favorite quarterback, Tom Brady. He lived his sports dream, through the team.
When Tom heard about Logan and his condition, he composed a personal message through a video to Logan and told him he is now his biggest Logan fan out there.
Read more about the story here: http://www.raredr.com/news/patient-has-a-little-tom-brady-ness-inside-him

The Gronk & Cancer Awareness

Rob Gronkowski (The Gronk) once shaved his head to raise money for pediatric cancer at the One Mission Buzz Off in Foxboro, joining more than 1,000 other freshly shaved Patriots fans. The event raised over $1 million.

McCourty Twins and Sickle Cell Anemia

Jason & Devin McCourty are twin brothers and starting defensive backs in the NFL. Devin plays for the New England Patriots while Jason plays for the Tennessee Titans. Jason & Devin have seen first-hand the devastating effects of Sickle Cell on family members and they have chosen to help families in similar situations. The twins work with the Embrace Kids Foundation, a non-profit that supports children and families battling Sickle Cell.

 Nate Solder’s Family Cancer

In 2014, Nate was diagnosed with testicular cancer but later that year he was back in the game he loved played a big part in protecting quarterback Tom Brady all the way to the Super Bowl the following year.
His (at the time) 3-month-old son Hudson was diagnosed with Wilms tumors, a rare pediatric cancer.
Both are doing well today. And the Patriots never gave up on Nate during his setbacks and he will be on the field protecting Tom Terrific this coming Sunday.
Read more about the story http://www.raredr.com/news/nate-solder

The Patriots and The Jett Foundation

During the training camp for their superbowl winning 2014/2015 season, the New England Patriots hosted the Jett Foundation and showed once again that they care about rare.

The Great City of Boston

Boston/Cambridge is the home of some of the greatest and most innovative rare disease companies in the world, from Genzyme and Biogen to Alnylam Pharmaceuticals and Sarepta Therapeutics. These companies are changing the lives of rare disease patients daily so they have the chance to cheer on the Patriots to victory.

Atlanta’s Contribution to Society

Coke Zero.

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