Rare Disease Report

Patient, Police and Fire Fighters 'Shake It Off' for Rare Disease

MARCH 08, 2017
Andrew Black
Hallie Bea Barnard is a young girl suffering from Diamond Blackfan Anemia (DBA) and is currently looking for a bone marrow transplant match.
With help from her parents, she created an organization called Hallie’s Heroes to help raise money to fund research, and also advocate for bone marrow donors.
In an effort to serve and protect Hallie’s Heroes mission, police and firefighers from her home town of Fort Worth, as well as the non-profit DKMS, created an awareness video to the tune of Taylor Swift’s “Shake It Off” (see below).

For more information on Hallie’s Heroes or to donate, visit http://teamhalliebea.org

About Diamond Blackfan Anemia (DBA)

DBA is a rare inherited bone marrow failure syndrome, characterized by a failure of the bone marrow to produce red blood cells. The lack of red blood cells become apparent in the first year of an individual’s life. DBA affects approximately 5 to 7 per million live born infants worldwide. 

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