Rare Disease Report

13-Year-Old Osteoporosis Imperfecta Patient Sings Eminem

OCTOBER 26, 2016
James Radke
Rap singer, and osetogenesis imperfect patient, Sparsh Shah has finished his cover album “Tribute to Eminem” and it can be downloaded here.  Some of the songs on the album include ‘Lose Yourself’, ‘Love the Way You Lie’,and ‘Rap God’.
 
Below are 2 of the songs on the CD showing off Sparsh’ singing and rapping talents.

Below are two clips showing the singing talents of Sparsh.
 

 

 

What is Osteoporosis Imperfecta

Osteogenesis Imperfecta, also known as brittle bone disease, is a congenial bone disorder. People with this disorder have bones that break easily, sometimes for no apparent reason. There are 8 different types of osteogenesis imperfecta that are distinguished by different signs and symptoms. Type 1 is the mildest form of osteogenesis imperfecta and type 2 is the most severe. Other types have signs and symptoms that fall somewhere between these two extremes.
 
Osteogenesis imperfecta affects an estimated 6 to 7 per 100,000 people worldwide.

Symptoms

  • Bone pain
  • Bone fractures
  • Blue sclera
  • Hearing loss
  • Bowed legs and arms
  • Kyphosis
  • Scoliosis
  • Hypermobility
  • Flat feet

Treatment

There is no specific treatment or cure for osteogenesis imperfecta. Treatment is directed toward preventing or controlling the symptoms, maximizing independent mobility, and developing optimal bone mass and muscle strength. This may involve physical therapy, bracing, surgery, rodding, and medications to reduce the risk of fractures (ie, biophosphonates).


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