Rare Disease Report

The Orphan Drug Act - How Much Has Changed Since 1983?

MAY 23, 2016
Desiree Howe

We sat down with  Rare Impact Award winner, Desiree Howe, president of the American Porphyria Foundation as she talked about the advances made in the rare disease community since the passing of the Orphan Drug Act in 1983. Desiree was one of the persons who testified before Congress in 1983 about this landmark piece of legislature.

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