Rare Disease Report

NET Research Foundation Receives Gift to Help NET Research

FEBRUARY 04, 2016
Rebekah Harrison
The Neuroendocrine Tumor (NET) Research Foundation received a major gift from the Margie and Robert E. Petersen Foundation to launch a research effort to control and cure neuroendocrine cancers.
 
The $15 million gift will provide $5 million a year for three years in funds and endowment to support research and investigators dedicated to a cure.
 
The donation lines up with World Cancer Day on February 4, 2016.

What are Neuroendocrine Tumors?

Neuroendocrine tumors (NETS) begin in the hormone-producing cells of the body’s neuroendocrine system, which is made up of cells that are a cross between traditional hormone-producing endocrine cells and nerve cells. Symptoms include hyperglycemia, weight loss, jaundice, night sweats, headache, anxiety and skin rash.
 
Right now, treatment includes surgery, radiation therapy and chemotherapy.
 
The prevalence has been estimated as 35 per 100,000 people. Automobile publishing giant Robert E. Petersen passed away from this form of cancer in 2007.
 
The monetary gift can be used for the NET Research Foundation’s commitment to funding research in order to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers. The foundation has already funded research at 7 of the top 10 U.S. cancer centers.
 
“A gift of this magnitude will greatly intensify the research that can be conducted in this rare disease space. With very little public funding for this type of research, a private gift of this magnitude is nothing short of transformational,” said Ron Hollander, executive director of NET Research Foundation. “We are so grateful to the Margie and Robert E. Petersen Foundation. This is an exciting time for cancer research, as new treatments like Immunotherapy are having breakthrough results for many forms of cancer. We will be reaching out to researchers throughout the US and beyond to bring the best ideas and investigators to the cause of curing neuroendocrine cancers.”
 
“With this gift to catalyze our efforts, we must now build and sustain this new level of intensity until we see our cause through to completion,” said Carol Branaman, board chair at NET Research Foundation.

Source

Net Research Foundation Receives “Transformational’ Gift from Margie and Robert E. Petersen Foundation [news release]. Boston, MA; Neuroendocrine Tumor Research Association: February 4, 2016. http://www.businesswire.com/news/home/20160204005054/en/Net-Research-Foundation-Receives-“Transformational”-Gift-Margie

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