Rare Disease Report

Rare Disease Heroes Highlights from an Inspiring Evening

DECEMBER 05, 2016
RDR Staff
On October 17th, we hosted the Rare Disease Heroes Event that recognized those hospitals and clinicians that have excelled in advancing the management of rare diseases across 5 specialties: Endocrinology, Genetics, Hematology, Lysosomal Diseases, and Neurology.
Highlights from that incredible evening can be seen in the following video.


Paul S. Thornton, M.D.
Cook Children’s
Dwight Koeberl, M.D., Ph.D.
Duke University
Jeffrey Lipton, M.D., Ph.D. 
Adrianna Vlachos, M.D.
Eva Atsidaftos, M.A .
Cohen Children's Medical Center
Lysosomal Diseases
Priya Kishnani, M.D.
Duke University
Horacio Kaufmann, M.D.
NYU School of Medicine

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