Rare Disease Report

Rare Diseases in Washington: #CuresRally for #CuresNow

SEPTEMBER 01, 2016
James Radke, PhD
On September 1 and 2, there is a #curesrally being held across social media to raise awareness of #curesnow and the need to pass the 21st Century Cures Act. The act will remove barriers to research collaboration, add the patient perspective to drug development and regulatory review, modernize clinical trials, provide new incentives for the development of orphan drugs, improve research infracture to improve efficacy, and invest in the next generation of researchers.
People are encouraged to create ways to highlight the #curenow message by posting messages on social media that are directed to their local representatives.
Be sure to contact your representatives in both the Congress and the Senate and remind them that these bills have been under review for over a year and time is up. We want #CURESNOW.

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