Rare Disease Report

But She Looks Healthy....

JULY 03, 2016
Noah Victoria

Noah Victoria has a metabolic condition called abetalipoproteinemia (A-beta) which is a rare genetic condition that results in a malabsorbtion of fat. Noah while looking healthy struggles daily with the plethora of complications that develop with this condition.

In this interview during NORD's Rare Impact Awards (which she was an awardee), Noah and her mother talk about the condition and the daily struggles Noah must endure.

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