Rare Disease Report

Mark Your Calendar: April 21 is AML World Awareness Day

APRIL 19, 2017
Mathew Shanley
April 21 is AML World Awareness Day.
Acute Myeloid Leukemia (AML) is a heterogeneous but often aggressive type of cancer.
AML World Awareness Day was 4 months in the making. In December 2016, during the American Society of Hematology (ASH) annual meeting, a collective of AML patient leaders, professional, and industry representatives – now known as the Know AML Coalition – gathered to agree on how to observe the new awareness day.
By not only promoting the history and causes of, and treatment options for AML, but also the available resources and support groups for the disease, Know AML is taking huge steps in providing help that can go a long way for both patients and healthcare professionals alike.
The Know-AML website has been divided into two specific sections – one for patients and one for healthcare professionals – and each has been segmented into various parts to assist in understanding this rare form of leukemia.
The patient portal specifically contains information dedicated to diagnosis, types of AML and treatment for the disease, while the healthcare professional portal is more in-depth. It provides a look inside the disease’s evolution and mutation, as well as its prognosis and potential treatment options.
One of the most valuable offerings from Know AML is the resource list provided on both the patient and healthcare professional portals. There is an array of resources available for patients of AML that can provide further detailed information about the disease as well as emotional support. These resources include 24-hour patient helpline services and financial advice for patients.
Patient forums are also available to provide patients the opportunity to interact with other patients and share experiences with each other. Getting a diagnosis of AML can be a devastating blow to the patient and their family. Providing a forum for patients to interact with others is a great way to cope with their ‘new normal’.

Know AML is encouraging patients and supporters to observe AML World Awareness Day by wearing red and black on April 21.
About Acute Myeloid Leukemia (AML)

Acute myeloid leukemia (AML) is a type of cancer in which the bone marrow makes abnormal myeloblasts. Symptoms include fatigue, recurrent infections and easy bruising. The average age of a patient with AML is approximately 67 years.
Of the potential risk factors that can contribute to the development of AML are age, gender, exposure to radiation or chemicals, previous blood diseases, and prior treatment for other forms of cancer.
Huge breakthroughs have been made in recent years in regard to understanding the genomic landscape for AML and how to best manage this rare cancer.

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