Rare Disease Report

2016 Rare Disease Day Highlights

APRIL 06, 2016
Guest post by NORD

Rare Disease Day® 2016 was our most successful campaign yet! Take a look at and share the highlight reel from this year to see how Rare Disease Day made an impact for the rare disease community this year.

2016 Highlights

  • Together, NORD planned and hosted 37 State House Events across the U.S., up from last year's 32 State House Events
  • Advocates in all 50 states worked to get a state-issued proclamation for "Rare Disease Day"
  • The Senate passed a resolution declaring Feb. 29, 2016 "Rare Disease Day"
  • Hundreds of advocates convened at the National Institutes of Health and in Washington, D.C. to advance progress for rare diseases
  • More than 2,100 people and 279 state legislators & staff attended the State House Events, which featured participants from 202 organizations, 197 patient & caregiver speakers, 81 state legislative speakers, and 26 medical professional & industry speakers
  • #RareDiseaseDay: we achieved greater awareness through social media by working together to make the official, global hashtag trend on Twitter for the first time and on Facebook for the second year in a row
  • 4,000+ people shared photos and stories in the Handprints Across America® campaign
  • The official, global video was translated into 20+ languages
  • 85+ countries joined in solidarity with Rare Disease Day founder, EURORDIS, to make the voice of rare diseases heard, including first time participants Andorra, Aruba, Indonesia, Libya, Mauritius, Moldova, Tanzania, Tunisia, Uganda and Zimbabwe

What are your hopes for in 2017?

NORD will not stop fighting for the 30 million Americans who are living with rare disease. In 2017, NORD's efforts will be louder and stronger! We need your help!

Tell us what you hope to accomplish in 2017, sign up to receive news and updates, and start planning today!

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