Rare Disease Report

Kyle Brown

Kyle is the founder and CEO of PatientCrossroads, a provider of patient registry solutions to the rare and neglected disease community. PatientCrossroads collects patient provided medical history and testing results in order to gain insight into disease progression and to recruit patients for inclusion in clinical studies and trials. Kyle is a respected authority on rare disease patient registries and is a frequent speaker at research conferences educating the non-profit and research community on the need for universally accessible, de-identified patient information. Kyle's passion is to change the economics of patient provided information from closed, proprietary access, to universally available self-funding programs that accelerate disease research.
May 07, 2015
If your website isn't mobile friendly, you will drop in Google search results.
April 17, 2015
In a perfect world, there would be a single worldwide patient registry for each of the 7,000 known diseases.
March 12, 2015
I'm an Apple fan, and their announcement about ResearchKit and how it will help to spur disease research is music to my ears
February 06, 2015
As president and founder of a patient registry company, I am often asked 'who owns the patient provided data in your registries'.
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