Rare Disease Report

Kendra Gottsleben

Kendra Gottsleben is a Marketing Communication Specialist, author, and spokesperson on living a life with a rare disease and disability. She has defined her life by a positive outlook and success in overcoming obstacles, and refuses to be defined by MPS — the rare genetic condition she has had since birth.
July 06, 2016
If you are a person without a rare health condition or disability, I encourage you to think of an outfit or a special pair of shoes that you love and think about the feelings you gain from wearing them: Confidence. Motivation. Power.
February 13, 2016
Every person has a story worth telling. You just never know how or who you might inspire and help make a difference.
January 04, 2016
There are countless sayings that we hear as we go through life. At this point in my life, I keep coming back to one particular phrase: "There is a first time for everything."
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