Rare Disease Report

Patient Engagement - From Bench Top to Bedside

OCTOBER 22, 2015
Ron Bartek



Ronald Bartek, co-founder and president of the Friedreich's Ataxia Research Alliance and NORD Board Member talks about the importance of involving patients in conversations in all studies - from basic science experiments to phase 3 pivotal trials and FDA meetings.

For more information about Friedreich's Ataxia, visit www.curefa.org

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