Rare Disease Report

NORD Summit, Patient Focused Drug Development, and a Gala

NOVEMBER 05, 2015
Susan Kahn



At the NORD Rare Diseases and Orphan Products BreakThrough Summit, we talked with Susan Kahn, executive director of the National Tay-Sachs & Allied Diseases Association (NTSAD) about the summit and her organization's plans to use the information obtained to advance their efforts to find treatments for Tay-Sachs, Canavan, Sandhoff, GMI and other related conditions.

Susan also commented on the upcoming Imagine & Believe fundraiser being held November 5th in Cambridge, Massachusetts. For more information, click here.

Stay informed on the latest rare disease news and developments by signing up for our newsletter.
Copyright © RareDR 2013-2018 Rare Disease Communications. All Rights Reserved.