Rare Disease Report

Some1 Like You

SEPTEMBER 16, 2017
Makayla Allison

At the Global Genes Patient and Advocacy Summit, we talked with Makayla Allison, founder of Some1 Like You her organization.

Some1 Like You is a means for rare and undiagnosed individuals to be matched with people with similar conditions. 

As Makayla explains in this video, the idea for the service was inspired by Makayla daughter who did not get properly diagnosed with Ehlers Danlos syndrome until she was 6 years old. Makayla hopes that Some1 Like You can help patients get connected, and possibly diagnosed, by their similar symptomologies.

For more information, visit www.some1likeyou.com

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