Rare Disease Report

Photography Book Focused on Rare Diseases

SEPTEMBER 15, 2017
Karen Haberberg

At Global Genes Patient Advocacy Summit, we talked with Karen Haberberg about the photography book she developed that includes stories and photos of 29 families affected by rare diseases.

As Karen explains in the interview, all proceeds from the sale of the book go to Global Genes but advocacy groups can also purchase the book directly from Karen at cost and they too can then collect any profits moving forward. The book can be purchased at amazon.com.

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