Rare Disease Report

Genetic Data Sharing

SEPTEMBER 26, 2017

At the Global Genes Patient and Advocacy Summit, we talked with Hayley Brooks, MS, of the Broad Institute in Cambridge, MA about their genomics data sharing program.

The Broad Institute is a leader in genomic research and much of the data they have collected they are now allowing researchers to have access to via their data sharing program.

As Ms Brooks explains in this interview, accredited researchers can obtain genomic information on a variety of condition, including many rare diseases, so that the expense of genetic sequencing will not need to be duplicated while also allowing the data being viewed by different scientists to be consistent.

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