Rare Disease Report

Is Fibromuscular Dysplasia a Rare Disease?

MAY 22, 2017
Esther Kim, MD, PhD

At the annual FMDSA Patient Meeting in Cleveland Ohio, we talked with Esther Kim, MD, MPH, of Vanderbilt University about the prevalence of fibromuscular dysplasia.
According to Dr Kim, the number of people with FMD is currently unknown and she suspects that many patients with the condition do not know they have the condition for the simple reason that diagnosis requires imaging that is not routinely performed. 
Dr Kim hypothesized that if scanning vascular beds were routinely performed in middle aged woman, much like colon cancer is screened after the age of 50, the prevalence of FMD would likely be much higher (as would our understanding of the condition). Unfortunately, we currently do not have a safe, inexpensive,routine test available that can screen the entire population for FMD.

For more information about FMD, visit www.fmdsa.org

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