Rare Disease Report

RDR Road Trip Heading to AAN 2016

APRIL 13, 2016
RDR Staff
We at Rare Disease Report are looking forward to attending the American Academy of Neurology (AAN) 2016 Annual Meeting in Vancouver BC this year and reporting back daily with highlights from the conference.

Some of the topics we are eager to learn more about include:
  • New enzyme replacement therapy in development to treat late-onset Pompe disease
  • Duchenne muscular dystrophy updates for eteplirsen, ataluren, deflazacort, etc
  • Details of the latest developments to manage neuromyelitis optica
  • Efficacy of Banzel to treat Lennox-Gastaut Syndrome
  • Afinitor – is it even better than first thought for tuberous sclerosis complex?
  • Stiff person syndrome – how common is it?
  • The latest on Abobotulinum toxin A
  • Treatment options in development for super-refractory status epilepticus
  • Zika virus and neuropathology
  • NFL players and brain damage
  • And much much more.

Look for our daily updates during the conference. It is going to be an exciting time with so many new orphan drugs being tested and long term data presented.

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