Raredr

Videos

Amicus Therapeutics' CabaRare
Confessions of a PKU Cheater
Advice for Teens with PKU
PKU and the Brain
Koolen-De Vries Syndrome
The Sarcoma Foundation of America in Washington DC for Rare Disease Day 2017
Rare Disease Hawaii
Caregiver Burden: For My Birthday, I Want a Nap
Using Dentists to Diagnose Pemphigus and Pemphigoid Patients
WEP Clinical - Expanded Access Programs
Update on MLD Clinical Trials
Rare Disease Day - How Important is it?
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