Raredr

Respiratory

The Sarcoidosis App – Mobile-Based Research to Collect Rare Disease Data Globally
The App was developed by Misha Rosenbach, MD and Daniel O’Connor, a fourth-year medical student at University of Pennsylvania.
CTP-656, using a novel application of deuterium chemistry, is a modified version of Kalydeco
Cystic fibrosis patients often develop EPI as a result of the mucus build up that occurs in the pancreas that leads to decreased exocrine pancreatic enzymes being released.
At the Child Neurology Society Annual Meeting (CNS 2016) in Vancouver, we talked with James Meyer, Senior Director of Medical Affairs at Marathon Pharmaceuticals about their poster presentation
Nurse Beth Nguyen is a patient with syringomyelia, a rare disease in which cysts form inside the spinal cord. In this interview, she describes how the disease affects her daily activities.
top 5 memes for cystic fibrosis
SAB Biotherapeutics is getting up to $5.3 million from the US Government to test the company's SAB-301 antibody to treat Middle East respiratory syndrome coronovirus (MERS-CoV).
Vertex reports that one of its phase 3 clinical trials looking at the combination of VX-661 with ivacaftor to treat various subgroups of cystic fibrosis (CF) patients has been stopped.
The short-film Breathe: Battle with Cystic Fibrosis and the music video Conquer by Rivvrs are helping Bradley Bjornstad raise awareness for cystic fibrosis
While the average life expectancy of persons living with CF past childhood is 37, researchers have asserted that babies born in the 2000s will live well into their fifties.
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