Patients & Caregivers
Neuroendocrine Tumors: A Patient Survey
The survey consisted of 12 multiple-choice questions to determine the physical, emotional, and informational challenges these patients face.
The Origins of Sodium Thiosulfate as an Otoprotective Agent
The series of scientific and clinical breakthroughs began with a curious husband trying to understand his wife hearing loss
Hearing Aids and Parental Concerns
The added stigma of hearing loss to an already stigmatized child (due to cancer) is of great concern.
Hearing Aids and Strong-willed 5-Year Olds
the detrimental effects the hearing loss has had on her son’s learning and socializing is a great concern
Chemotherapy, Hearing Loss, and School Bureaucracy
Hearing loss can impede a child’s ability to learn. Special assistance is available at schools but to qualify can be tricky.
The Real Cost of Hearing Aids
the cost of hearing aids is a major problem given the high incidence of them getting lost or damage due to children being children.
Mother and Son with Cisplatin-induced Hearing Loss
Its a daily struggle. The conversations that happen or don't happen in our household are a struggle.
Survey Results Confirm Difficulty of Living with FCS
Dr Alan Brown tells
about FCS as a disease state, the negative effects experienced by patients, and the potential for a therapy coming through the pipeline.
Second CAR T-Cell Therapy Approved by FDA
The FDA approved gene therapy Yescarta for the treatment of some patients with relapsed/refractory aggressive B-cell non-Hodgkin lymphoma (NHL).
Otoprotectant Properties of Sodium Thiosulfate: Results of the SIOPEL 6 Study
In the cisplatin alone group, 67% of patients showed signs of hearing loss compared to only 37% in the cisplatin + sodium thiosulfate group.
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