Raredr

Oncology

Meet Cale Ferrin: Rare Disease Patient and Creighton Blue Jays' #1 Fan
Cale has Fanconi anemia, an ultra-rare blood disorder. At last count (when he was 7 years old) he had endured over 100 hospital stays and 26 surgeries. He thinks Creighton Blue Jays should win the NCAA tournament this year.
The battle for which drug will dominate advanced ovarian cancer treatment just got interesting. And regardless over which drug dominates, the true winner will be the patients given the very impressive data that is emerging.
From 1999 to 2015, a total of 45,221 deaths caused from mesothelioma in people older than 25-years-old were recorded in the US.
Hair loss, skin rash, dry skin, nail problems, bloating, bruising, and many other side effects can greatly impact the cancer patient's appearance. That does not mean they can’t have options.
At Rare Disease in Washington DC, we talked with Brian Wood about the years of being unable to properly get a diagnosis of extra adrenal pheochromatocytoma.
Othon Iliopoulos, MD, of Massachusetts General Hospital describes Von Hippel-Lindau (VHL) Disease and the research his team is doing to better manage this rare condition.
TV and radio personality Alan Colmes died following a brief battle with lymphoma. Mr Colmes was 66 years old. It is uncertain what type of lymphoma he had.
A Phase II study testing savolitinib in locally advanced or metastatic pulmonary sarcomatoid carcinoma (PSC) has begun in China.
Michael Bublé’s Son Responding to Cancer Treatment. News comes as Michael releases new video
Actor Richard Hatch, star of the 80s TV show ‘Battlestar Galactica’ has passed away following his battle with stage 4 pancreatic cancer.
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