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http://www.raredr.com/videos/Fibromuscular-Dysplasia-Image-Bank
Dr Romero explains in this video, he is hopeful that the image bank will encourage companies to conduct clinical trials for this condition while at the same time, helping us better understand its pathophysiology and natural history.
http://www.raredr.com/events/fibromuscular-dysplasia-society-america-sixth-annual-conference
Cleveland, OH
http://www.raredr.com/videos/Fibromuscular-Dysplasia-Olin
Jeffrey W. Olin, DO, FACC, FAHA, professor of Medicine at Icahn School of Medicine at Mount Sinai talks about fibromuscular dysplasia (FMD) and some of the early signs and symptoms commonly seen in this condition. Although it is considered a rare disease, Dr Olin believes it may be more common than we think.
http://www.raredr.com/videos/Fibromuscular-Dysplasia-Symptoms-Diagnosis
http://www.raredr.com/events/fibromuscular-dysplasia-conference
Cleveland
http://www.raredr.com/videos/Imaging-Treatment-Patients-FMD
Javier Romero MD of Massachusetts General Hospital recently sat down with Rare Disease Report to explain the importance of imaging to diagnose and treat fibromuscular dysplasia (FMD).
http://www.raredr.com/conferences/fmd2017/fmd-diagnosis
Cindy Speck of Virginia describes her diagnosis of fibromuscular dysplasia being the result of an ENT specialist doing a scan for a salivary gland tumor
http://www.raredr.com/conferences/fmd2017/fmd-rare
According to Dr Kim, the number of people with FMD is currently unknown and the prevalence is likely much higher than current estimates.
http://www.raredr.com/conferences/fmd2017/fmd-children
Kevin Meyers, MBBSc, of the Children's Hospital of Philadelphia (CHOP) talks about the incidence and symptoms of fibromuscular dysplasia (FMD) in children.
http://www.raredr.com/resource-guide//Appendix-B/Appendix-B-F
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