Rare Disease Report
Patients & Caregivers

RARE Champion of Hope Collaboration in Advocacy

SEPTEMBER 24, 2017
Kari Luther Rosbeck and Jim O'Heir
At this year's RARE Champion of Hope awards held in Irvine California by Global Genes, the recipient of Collaboration in Advocacy award was Kari Luther Rosbeck, president  of the Tuberous Sclerosis Alliance.

In this interview held during the 'blue carpet' event prior to the award ceremony, Ms Rosbeck talks about the award.

The award was presented to Rosbeck by actor Jim O'Heir who regularly participates to the Tuberous Sclerosis Alliance fundraisers, such as the reading of the play 4 Decades, 1 Disease in 2015.

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