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Gaucher Disease

Gaucher, Multiple Myeloma, and Parkinsonism
Gaucher, Multiple Myeloma, and Parkinsonism
Barry Rosenbloom, MD, Cedar Sinai Medical Center talks about studies showing that patients with Gaucher disease are at increased risk for multiple myeloma and Parkinson's-like disease.
Diagnosing Gaucher Disease Still A Problem
Diagnosing Gaucher Disease Still A Problem
Dr. Neal Weinreb discusses one of the major problems still facing the Gaucher patient - being diagnosed.
Pfizer's Commitment to Gaucher Patients
Pfizer's Commitment to Gaucher Patients
We recently talked with Rory O'Connor, Senior VP, Global Medical Affairs, Innovative Pharma Business, Pfizer Inc to talk about Pfizer's commitment to helping patients with Gaucher disease.
How You Can Help People Living with Gaucher Disease
How You Can Help People Living with Gaucher Disease
The Steps Ahead of Gaucher program will be distributing free green shoelaces to thousands of people in the coming weeks.
A Conversation with Pfizer's Patient Affairs Liaison about Their Gaucher Patient Support Program
A Conversation with Pfizer's Patient Affairs Liaison about Their Gaucher Patient Support Program
Mariah Kelly, BSN, RN, Advocacy Lead, and Patient Affairs Liaison at Pfizer to talk about her company's commitment to rare diseases, including a most recent program: Gaucher Personal Support (GPS).

Advocacy/Support Groups
National Gaucher Foundation. A national non-profit patient advocacy group dedicated to Gaucher disease.
Gaucher Personal Support (GPS). A group of health care specialists who help patients with a variety of issues associated with the management of Gaucher disease (i.e., reimbursement assistance, help with locating infusion services, and ongoingpharmacy support).
Children’s Gaucher Research Fund. A 501(c)(3) charitable organization that raises funds to coordinate and support research to find a cure for Type 2 and Type 3 Gaucher Disease.
Global Genes. A non-profit organization focused on building awareness, and providing resources for families living with rare diseases.
National Organization for Rare Disorders (NORD). A non-profit organization dedicated to helping people with rare diseases and assisting the organizations that serve them.
Clinical Trial Information
Resources

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