Rare Disease Report
Patients & Caregivers

Gaucher Disease

Advocacy/Support Groups
National Gaucher Foundation. A national non-profit patient advocacy group dedicated to Gaucher disease.
Gaucher Personal Support (GPS). A group of health care specialists who help patients with a variety of issues associated with the management of Gaucher disease (i.e., reimbursement assistance, help with locating infusion services, and ongoingpharmacy support).
Children's Gaucher Research Fund. A 501(c)(3) charitable organization that raises funds to coordinate and support research to find a cure for Type 2 and Type 3 Gaucher Disease.
Global Genes. A non-profit organization focused on building awareness, and providing resources for families living with rare diseases.
National Organization for Rare Disorders (NORD). A non-profit organization dedicated to helping people with rare diseases and assisting the organizations that serve them.
Clinical Trial Information

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