http://www.raredr.com/news/wsctf
Worldwide Syringomyelia & Chiari Task Force

Beth Nguyen, RN




Beth Nguyen, RN, is a patient with syringomyelia, a rare disease in which cysts form inside the spinal cord leading to a plethora of deliberating symptoms. 
 
In this interview, Ms Nguyen talks about the advocacy group she co-founded, the Worldwide Syringomyelia & Chiari Task Force and its goals to educate clinicians about this condition and help patients manage their condition (and find a cure).
 
For more information, visit www.wstfcure.org
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