Audrey Nethery is a 6-year-old girl who is diagnosed with Diamond Blackfan Anemia (DBA). DBA is a rare inherited bone marrow failure syndrome, characterized by a failure of the bone marrow to produce red blood cells. Even with her condition, Audrey can’t fight her passion to move and groove to her favorite songs.
Most recently, Audrey was caught dancing with one of her favorite pop stars Selena Gomez, before the artist’s concert. Without missing a beat, she was impressing Gomez with her own popstar-like atittude.
As Audrey danced alongside Selena Gomez, she also danced in front of the eyes of over 6 million viewers on Selena’s Instagram as the singer posted the video on her account.
Since posting the video on Wednesday June 22nd, 6.2 million people have now seen someone who is diagnosed with DBA and that number is still increasing. With her kindhearted actions of taking the time to meet and have a pre-concert dance with Audrey, Selena Gomez has brought more attention to the rare disease.
When celebrities like Selena Gomez take the time to help share and highlight those with rare diseases, it brings vast awareness and attention to a rare condition people may have never heard of before.
With their large fan-based followings, celebrities, can provide a voice and an audience for those with rare diseases to help spread awareness and create more advocacies.
DBA is a rare inherited bone marrow failure syndrome, characterized by a failure of the bone marrow to produce red blood cells. The lack of red blood cells become apparent in the first year of an individuals life. DBA affects approximately 5 to 7 per million live born infants worldwide. Approximately half of individuals with DBA develop physical abnormalities as well like head size (microcephaly) or broad, flat bridge of the nose.