Number of rare disease New Orleans Saints superfan
signed to travel with the team to their next game as their hype-man.
Number of siblings that were conjoined
and the number of days the separation operation took.
Number of tries Teva Pharmaceutical Industries submitted
their orphan drug treatment of chorea associated with Huntington disease to the FDA.
Number of junior ROTC boys carrying the American Flag when the spina Bifida Patient stood
to honor it.
The amount of Rare Disease Heroes Awards
that were given in Arlington, Virginia on Monday.
The age of Ellie McGinn who started a campaign
to get her long tongue twister rare disease’s name changed.
Number of yards running back Tevin Coleman had in Denver despite his previous concerns
of carrying the sickle cell trait.
Number of people who saw the behind the scenes picture
of the filming of FDA’s Janet Woodcock interview.
Number of people who liked Jim’s Zebra tie
for the Rare Disease Heroes Recognition Dinner.
Number of views for Living With Von Hippel-Lindau disease video
The amount of money research institutes studying rare diseases just received
from the FDA.