http://www.raredr.com/news/factors-of-managing-your-childs-rare-disease-mpsii
The Hidden Costs of Managing a Rare Disease

Marielle Marinoff

In an RDR exclusive interview, we spoke with Marielle, a parent of a child diagnosed with MPS II (Hunter syndrome). During the interview, she discussed the other factors of managing a child with a rare disease such as travel expenses, insurance, and needs that insurance doesn't always cover.
 
To find out more about Aiden or Hunter syndrome, visit:
 
http://sockit2huntersyndrome.org
 
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