http://www.raredr.com/news/dmd-expensive
Duchenne Muscular Dystrophy is Expensive Giving Fund Hopes to Help

James Radke

The Jett Giving Fund video premiered at the Shine A Light gala this weekend. The video shows the hardship – physically and financially – that this rare disease has on families.  To help, the Jett Foundation created the Giving Fund to assist families in raising the money necessary to get the equipment they need that is usually not covered by medical insurance.

 

How does The Giving Fund work? 

The Jett Foundation partners with families who will work to raise 50% of their monetary need. The remaining funds will be provided by the Jett Foundation, through the support of generous corporate and individual donors.  A contribution to this Fund is tax-deductible, to the extent allowed under applicable law, and is an unrestricted contribution to the Jett Giving Fund. Your contribution will be combined with other donations to ensure that every family in need of essential items will benefit from your generosity.
 
For more information, visit jettfoundation.org/givingfund

We would like to thank the Jett Foundation for allowing us to post this video.

About Duchenne Muscular Dystrophy

Duchenne muscular dystrophy is a progressive muscle disorder caused by the lack of functional dystrophin protein. Patients with Duchenne muscular dystrophy lose the ability to walk as early as age 10 and experience life-threatening lung and heart complications in their late teens and twenties.

There are an estimated 35,000 patients with Duchenne in the United States and Europe but the population has many subsets based on mutations of the dystrophin gene.
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