http://www.raredr.com/news/children-systemic-juvenile-idiopathic-arthritis
Helping Children Understand Systemic Juvenile Idiopathic Arthritis

Medikidz

Medikidz is a global leader in providing medical information to children. From comic books to virtual reality applications, Medikidz is using a plethora of technologies to communicate complex medical information to kids in entertaining and engaging formats. 
 
All Medikidz materials are written by doctors and peer reviewed by leading healthcare professionals to ensure the highest quality medically-accurate information. Children are introduced to the charismatic Medikidz: superheroes from Mediland, the planet shaped like the human body, who help explain all about health and illness in a way they can understand. To add to the uniqueness of these resources, our stories are generally based on a real young person living with the condition.
 
As a dedicated resource provider to the rare disease community, Medikidz has developed titles on Urea Cycle Disorders, Systemic Juvenile Idiopathic Arthritis (sJIA), and Growth Related Disorders (GRDs), amongst other rare conditions. Medikidz is committed to providing unique resources to the rare disease community, which is often overlooked or does not have access to child-friendly materials.

Systemic Juvenile Idiopathic Arthritis (sJIA)



sJIA is a rare subset of JIA in which the immune system over-reacts, for reasons that remain poorly understood, attacking healthy cells and tissues. This results in inflammation and joint swelling, as well as swelling of internal organs. sJIA can also cause fevers, a rash, and shortness of breath. sJIA can affect anyone, regardless of ethnicity or gender. Symptoms tend to appear before the age of 16 and affect males and females in equal numbers. 
 
sJIA can be a difficult condition to clinically manage, due to the unpredictability of symptom flare-ups. These flare-ups can be embarrassing, confusing and frustrating for kids, which is why child-friendly resources are so important for those who are struggling with sJIA. It gives them an understanding of their condition so they feel empowered by their knowledge and can more easily explain sJIA to others. 
 
There are several treatments available for sJIA, including non-steroidal anti-inflammatory drugs (NSAIDs), glucocorticoids, and disease-modifying anti-rheumatic drugs (DMARDs). Physical therapy is also used to increase flexibility and to help strengthen muscles and joints. 
 

The Comic Book: An Active Boy with sJIA

Medikidz Explain Systemic Juvenile Idiopathic Arthritis, created in collaboration with Novartis Pharmaceuticals, tells the story of David, a young boy who loves to build things and is living with sJIA. 
 
While playing with friends, David struggles to hide his rash and can’t keep up with the others because his joints hurt and he is easily out of breath. David does not understand what it means to have sJIA, or why these things are happening to his body. The Medikidz arrive to help, whisking David off to Mediland, where he is taken on a journey through the human body to explain all about sJIA and why his body reacts the way it does. 



Together, the Medikidz explain the anatomy, physiology, and pathophysiology of sJIA. David is shown how white blood cells normally work and how this differs in sJIA. The Medikidz also emphasize to David how important it is to take his medication as prescribed and to regularly practice his physical therapy.
 
By the end of the Mediland adventure, David understands what sJIA is, how to take care of himself, and, above all, how to talk to his friends about his condition and symptoms. 
 
Providing important medical information and resources to children with rare diseases in understandable language and accessible formats is critical. Medikidz is a committed partner in making these resources a reality. 
 
Ask a health care provider how you can get a copy of the Medikidz Explain Systemic Juvenile Idiopathic Arthritis comic book. To learn more about Medikidz, please visit www.medikidz.com




 

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