http://www.raredr.com/news/an-update-on-the-21st-century-cures-act-
An Update on the 21st Century Cures Act

Guest post by NORD

In a Congress that is sharply divided on many fronts, the 21st Century Cures Act received notably bipartisan approval in July with a 344-77 vote in the U.S. House of Representatives. The bill, which includes broad-ranging measures to advance innovation in the discovery, development and distribution of medical therapies, now has gone to the Senate for discussion and review.

Over the months that the bill was debated in the House, NORD representatives provided both oral and written testimony on several occasions. At the time of the House approval, NORD President and CEO Peter L. Saltonstall issued a statement praising the Act’s mandatory funding for NIH and provisions to streamline and incentivize development and review of orphan therapies.

House Energy and Commerce Committee Chairman Fred Upton of Michigan originally introduced the bill, in collaboration with Representative Diana DeGette of Colorado. Specific measures within the legislation include:
 
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