http://www.raredr.com/conferences/worldsymposium/rare-disease-trials
Rare Disease Clinical Trials - Are They Measuring the Right Things?

Erika Augustine, MD




Erika Augustine, MD, of the University of Rochester talks about the need to have a dialog with the key players in the rare disease community (patients, clinicians, pharmaceutical companies, FDA) on what outcome measures are most appropriate in clinical trials involving rare diseases. 
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