http://www.raredr.com/conferences/worldsymposium/patients-social-media
Do Rare Disease Patients Benefit from Social Media and Chat Rooms?

Amanda Hodgkins




At WORLDSymposium 2016 in San Diego,CA, we talked with Amanda Hodgkins of Emory University talks about a study she was involved with that interviewed Fabry and Gaucher disease patients about their interactions with other patients on social media sites.
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