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Patients & Caregivers

Worldwide Syringomyelia & Chiari Task Force

NOVEMBER 09, 2016
Beth Nguyen, RN



Beth Nguyen, RN, is a patient with syringomyelia, a rare disease in which cysts form inside the spinal cord leading to a plethora of deliberating symptoms. 
 
In this interview, Ms Nguyen talks about the advocacy group she co-founded, the Worldwide Syringomyelia & Chiari Task Force and its goals to educate clinicians about this condition and help patients manage their condition (and find a cure).
 
For more information, visit www.wstfcure.org


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