Rare Disease Report
Patients & Caregivers

What is syringomyelia?

OCTOBER 26, 2016
Beth Nguyen, RN

At the NORD Rare Disease and Orphan Drug Breakthrough Summit in Arlington VA, we talked with Beth Nguyen, RN,  a patient with syringomyelia, about the rare disease in which cysts form inside the spinal cord. These cysts lead to multiple symptoms that impacts the person's ability to walk, breath, digest, etc. 
For more information, visit www.wstfcure.org

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