Rare Disease Report
Patients & Caregivers

The Danish Batten Team

OCTOBER 08, 2016
Merete Staureby

The Danish Batten Team interacts closely with Batten disease families, from initial diagnosis to death, to make sure they are getting the best care available as well as the support and guidance needed for this difficult to manage disease. In this interview with Rare Disease Report, Merete Staureby, Chairperson of the Danish Batten Assocation, discusses their team approach to helping families.

This article was made possible by a sponsorship from BioMarin Pharmaceutical Inc. Rare Disease Report has sole control over the editorial content.

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