Sparsh Shah, the 13-year-old rapper, singer, MC, and osteogenesis imperfect patient can now add inspirational speaker to his list of accomplishments. At a recent TEDx talk, the multitalented Sparsh told the audience that the key steps to changing the “Impossible” to the “I’m Possible” is to follow your passion (singing and rapping), help others, be thankful, and dream big.
Whether it is dropping a CD of Eminem cover songs, singing the National Anthem at a New York Knicks game, making videos of his own original songs, or taking time to talk to other osteogenesis imperfecta patients frightened about an upcoming surgery, Sparsh is living proof that anyone can change the “Impossible” to the “I’m Possible”.
While Sparsh condition has left him with brittle bones and confined to a wheelchair, the joy he finds in following his passions makes Sparsh grateful for what he has and what he hopes to accomplish. And he wants to take that positive message to others who may feel hindered by their disabilities.
Osteogenesis Imperfecta is a congenial bone disorder in which the person has low levels of type I collagen. There are 8 different types of osteogenesis imperfecta that are distinguished by different signs, symptoms, and severity.
Common symptoms may include bone pain, bone fractures, blue sclera, hearing loss, bowed legs/arms, kyphosis, scoliosis, hypermobility, and flat feet.
There is no specific treatment or cure for osteogenesis imperfecta. Treatment is directed toward preventing or controlling the symptoms, maximizing independent mobility, and developing optimal bone mass and muscle strength. This may involve physical therapy, bracing, surgery, rodding, and medications to reduce the risk of fractures (i.e., bisphosphonates).
To see the some of the songs in Sparsh's repertoire, visit his YouTube channel.