Rare Disease Report
Patients & Caregivers

Origins of FARA

JULY 26, 2016
Ronald Bartek

At NORD's Rare Impact Awards in Washington DC, we talked with Ron Bartek, along side Kyle Bryant, about the origins of FARA (Friedreich's Ataxia Research Alliance). Ron is founder of FARA and the father of a Friedreich's ataxia patient. Kyle is a Friedreich's ataxia patient and founder of  rideATAXIA that has raised over $3 million for Friedreich's ataxia research.

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