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NORD Announces Research Grants Available for Rare Disease Studies

AUGUST 16, 2016
Andrew Black
The National Organization for Rare Disorders (NORD) has announced research grants are available to fund new research in rare disease studies. Nord distributes the grants to encourage scientific and clinical studies that will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases.
 
Two of NORD's previous research grants have led to FDA-approved orphan products to treat rare diseases.
 
Abstracts of research and letters of intent are needed for the application process. Applicants must send these to NORD by September 12, 2016.
 
Rare disease research grants that are available in the following:
 
  • Alvolar Capillary Dysplasiae- One grant of up to $50,000, for scientific and/or clinical research studies related to Alveolar Capillary Dysplasia (ACD
  • Appendix Cancer and Pseudomyxoma Peritonei - Two grants of up to $50,000 for scientific and/or clinical research studies related to Appendix Cancer and/or Pseudomyxoma Peritonei (PMP).
  • Autoimmune Polyglandular Syndrome Type 1 - One grant of up to $100,000 for scientific and/or clinical research studies related to Autoimmune Polyglandular Syndrome Type 1 (APS Type 1).
  • Homocystinuria - One grant of up to $30,000 for scientific and/or clinical research studies related to Homocystinuria due to Cystathionine Beta-Synthase Deficiency.
  • Malonic Aciduria - One grant of up to $30,000 for scientific and/or clinical research studies related to Malonic Aciduria.
  • Stiff Person Syndrome - One grant of up to $30,000 for scientific and/or clinical research studies related to Stiff Person Syndrome.
 
To apply for one of these grants provided by NORD, click here.

Additional Funding

The Children’s Cardiomyopathy Foundation (CCF) invites investigators to submit research proposals for basic, clinical, population/epidemiologic or translational studies focused on primary cardiomyopathy in children under the age of 18 years. Funding is available in the range of $25,000 to $50,000 for one year of total direct costs. To apply, click here.
 
Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) has grants available for the study and research towards Generalized lymphatic anomaly (lymphangiomatosis) & Gorham-Stout Syndrome. The period of award and level of funding is unique to each funded project, and depends wholly on the scope and requirements of each approach. To apply, click here.
 
TargetCancer Foundation is announcing their first round of rare cancer research grant funding for 2016. $200,000 is available in new grants supporting innovative rare cancer research, as well as a new program supporting patients facing cholangiocarcinoma. To apply, click here.
 


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